June 9

I feel pretty good, I had a doctors appt. last friday to see if I needed a blood or platlet transfusion. The blood work was ok and I found out about about the bone marrow they took. The bone marrow was negative for cancerous defections everything was normal. Thursday is the planned day for my next admission for chemo, this chemo is planned for a three day chemo Thursday, Friday, and Saturday. Then hopefully come home on Sunday afternoon.

June 1

My first experience of chemo was fine I only had some nausea the second day of chemo. But first I'll start with the part of the surgery for the marrow aspiration, port so I don't have to get poked every time, and they took some more cells for research. They had to try four times before they got an iv. We got to the hospital at 9:30 am and they didn't take me back for the surgery that was scheduled for 11:30 am, until 2:30. When they first put on the mask for the medicine to put me under it was as if they were tyring to smother me. After that feeling I don't remember much until they had me in the recovery room where my immediate family visited to see how I was doing. They then took me up to my room where my parents left and my sister stayed with me. They gave me the chemo that Thursday night. The only thing that was weird was that my urine was pink. Then again on Friday night. Saturday morning I felt a little bit nausea. But I was happy to finally go home Saturday afternoon. Today I feel real uneasy just with all the holes from the surgry, and just everything. I am just very uneasy about everything.

May 27

Today I had to do some personal man stuff today and then again tommarow. I got up at 6:15 am to eat me bagel with cream cheese. We spent a couple hours figuring out what to do and to finish the list that my mother gave my dad and I to complete. We met with the social worker to work out some questions we had. Then we went to the family room to call in to Social Security Disability. We set up a telephone appt. tommarow to start the ball rolling on that. The only thing that threw me off was after I told them what vien I thought was good they tried a different vien. They ended up using the vien I told them but I dont think they cleaned it, so if I get an infection I know what it is from. I'm just happy to be back home again.

In The Beginning

I was diagnosis with rheumatoid arthritis three years ago. My hip was hurting me and I was running a fever on and off for a month. After running a fever of 102.8 on May 19 morning my mother called the primary care physician to get an appointment. She ran a mono test to see if I had mono but it was negative. She recommended that I go the the Cleveland Clinic to figure out what was going on. Our personal thought was that it was a joint infection in the hip. I was admitted to the hospital May 19 around the evening time. While we were in the emergency room they took four glass bottles that were a little smaller than Red Bull energy drink cans. These were to see if I had an infection in my blood. This made me very nervous because just because of how long it took it usually takes maybe one to two minutes to draw the blood. This took at least three to four minutes. Which made me uncomfortable just because of how long it took to draw the blood. Tuesday May 20 I had to wait all day to go to the MRI I ended up going to it around 6 pm. The next morning Wednesday May 21 it was unusual the doctors didn't come until about 11 am I always saw at least one doctor by at least by 9 am. So when the doctors asked me to come to a small room with my mother I was a little concerned. They said they saw a mass in the MRI which could be an infection but most likely it was cancerous. We were both really shocked I really didn't take in what else they said. My mom ended up calling my bother and my dad to come to the Clinic. A couple hours later I went to have a biopsy the biopsy was done with a big needle which was the size of a regular bendy straw, they then bent it over to suck out the tissue. They did this four times, but thankfully they gave me some stuff to settle me down other wise I wouldn't have been able to be still. This was all they Wednesday. The next day Thursday May 22 they sent me for an X-ray of my whole leg and another CAT scan. Friday May 23 they did a PET scan to see what is growing and where it is growing at. They saw the main mass in my leg they then said they also saw a small spot in my lung and a 2 centimeter mass by my kidney. Right before I was discharged I had to drink some nasty stuff to fill the GI tract to look at in the CAT scan. I was finally able to leave the hospital at 6:30 pm Friday.